r/SipsTea 14h ago

Wait a damn minute! Bad time for a how-to YouTube video.

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u/rustyroo2021 12h ago edited 1h ago

I've had a hell of a time with a blood disorder and went to get a second opinion. I was thrilled when my doctor left me for like 45 mins to go do some research and came back with a plan that's actually working right now! I could care less if he watched a YouTube video or read it in a book. Just glad he did it šŸ¤·ā€ā™€ļø

Edit: Thanks the for award šŸ˜‰

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u/cjsv7657 11h ago

My doctor just says "lets look it up" and pulls out his phone. He has access to a couple websites that are login and only accessible to medical professionals. The printout from that website was a hell of a lot easier than me trying to parse through 15,000 words of AI bullshit websites and reddit posts before I got to real information.

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u/Bloodmark3 1h ago

Up-to-date, peak website ive seen my PA look at. He has a subscription/access that let's him see the newest possible research/contraindications/etc for all drugs. I WANT him researching that.

Why tf would we want doctors to just try and memorize everything from Med school then never research again?

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u/chancefruit 10h ago

your doc is awesome :)

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u/Phyraxus56 13m ago

You likely just need a (very expensive) subscription

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u/Addicted_to_Nature 11h ago

Lol I just got diagnosed with polycythemia vera last year and made an appointment with my GP to make sure she was on board with everything I learned from the oncologist/hemotologist.

Was in the room while she was looking it up more to make sure none of the meds she was prescribing me for other things was going to be an issue. She basically said "sorry this isn't one of the regular diagnoses I come across often and want to make sure everything I'm doing goes along with what your hemotologist is doing". Because yeah... Rare blood disorder isn't the same as the colds/flus/rashes she sees on a daily basis. She knows I work in the medical field and knows me well enough that she didn't have to leave the room for it šŸ˜… definitely would rather her do some educated googling than just be like "yeah I have everything about the rare blood disorder out of my speciality completely memorized and my brain thinks you'll be fine"

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u/Patient-Doughnut7266 11h ago

I have ITP and just got discharged from the hospital I went in with a count of 1,000 platelets which is very bad considering you should have at least 150,000. I couldn't go to the oncology/ hematology floor as I've got covid. So they put me on the respiratory floor even though I had no actual respiratory issues aside from a runny nose. The nurses were a bit confused but understood they couldn't risk exposing the people with cancer to my germs. They weren't thrilled at the prospect of doing transfusions 😬

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u/rustyroo2021 10h ago

Hey same!!! Sorry you're going through it too. Been in the hospital quite a bit since I tend to fall under 10k a lot. But I've been stable for over a month and staying positive with this new plan! Wish you all the best!

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u/Patient-Doughnut7266 3h ago

Well hi! Don't bump into our folk terribly often! Congrats on being stable for a month, that is fantastic!! I tend to live anywhere from 40,000-70,000 without meds. Even with meds though when I get a viral illness (covid this time) nothing stops the tail spin and I end up in the hospital. I have had it for about 22 years and have tried everything but nothing fixed it. If you don't mind me asking what regiment are you on?

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u/rustyroo2021 2h ago

22 years?! I'm only a year and a half in and it's been exhausting! 12 hospital visits and lots of changes in meds already. Currently doing cyclosporine (to lower my immune system) and weekly nplate shots šŸ¤ž

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u/FakeTunaFromSubway 11h ago

Before anyone had heard of cupping, my mom had it done, and she pranked her MD sister-in-law like "hey, these spots on my back just appeared over a few days, any idea?" -- the doctor was like uhh... gotta go. She found her 10 minutes later deep in a medical textbook trying to diagnose her and revealed what cupping was and they all had a good laugh.

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u/rustyroo2021 11h ago

I have basically the opposite problem 🤣

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u/Patient-Doughnut7266 11h ago

Fellow blood disease haver, when I have to see a provider who isn't as familiar with the disease as a hematologist I'm glad when they look things up and ask questions. It means they actually care enough to make sure they don't do something that could harm me.

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u/jmads13 11h ago

*couldn’t care less.

Could care less implies you did care, and there was room to care less. Couldn’t care less means there was no room to care less than you did.

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u/massinvader 11h ago

fun thing about language is that its constantly evolving.

they actually both mean the same thing now, as infuriating as that may be to some lol.

kinda cool ain't it?

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u/tylercamp 11h ago

is there any other phrase where it means its own opposite

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u/massinvader 11h ago edited 11h ago

in the english language they're called 'auto-antonyms','contronyms' or 'Janus words'. words or phrases that can mean two exact opposites depending on the context.

"literally" may be the last one that was common that made the switch in our lifetime.

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u/tylercamp 10h ago

you’re right but I still hate it :( feels like the definition of someone mishearing a word and it’s such a simple and obvious thing to correct, feels lazy. and this isn’t even just not knowing a word, it’s a whole ass phrase. like it’s not a context clues thing, they just said it wrong like Ricky from trailer park boys lmao

not looking to convince, just vent

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u/tylercamp 10h ago edited 9h ago

like ā€œcouldā€ and ā€œcouldn’tā€ mean the same thing in this one specific sentence? lol

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u/jmads13 9h ago

It can still be illogical and wrong, even if idiots keep using it

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u/massinvader 8h ago

oh i don't disagree. just important to note that i think there was a study showing that the 'grammar nazi' types are usually of middling IQ. i personally wouldn't want to expose myself as one on public haha.

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u/jmads13 7h ago

I’d be careful going too deep on descriptivism. Enough people would have written ā€œpeople of middling IQ could of done betterā€, and I’d understand exactly what they meant, but I still wouldn’t argue that ā€œcould ofā€ was therefore acceptable.

Descriptivism describes how language is used, but it doesn’t require us to pretend every usage is equally coherent. ā€œCould care lessā€ literally says the opposite of ā€œcouldn’t care lessā€, and pretty clearly arose from a misunderstanding.

And ā€œcould care lessā€ is particularly American, so just because the yanks have accepted it doesn’t mean the rest of us can’t defend the language while there’s still something left to save. Diverging Englishes and all.

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u/MildlyAgitatedBovine 9h ago

I agree that you want ongoing research and reevaluation, but let's not pretend source quality doesn't matter...

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u/ivieta1 12h ago

You probably could have done that yourself

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u/Interesting_Tea5715 12h ago

I'll explain why you're getting downvoted.

Your essentially saying someone who's never touched a tool in their life can build a house as good as a professional just because they have the blueprint.

There's a lot of skill and knowledge that's needed to interpret these things and put them into action.

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u/[deleted] 12h ago

[deleted]

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u/Glum_Measurement2158 12h ago

you said that, and it is what you said

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u/[deleted] 12h ago

[deleted]

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u/OneTrueMailman 12h ago

adult here: you did infact imply (say) the stupid thing that everyone is accusing you of

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u/DieDieDieD 11h ago

My wife is a doctor and trust me - you don’t know shit.Ā 

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u/confusedandsmellyman 12h ago

I just watched someone show me how to bench press 300 pounds and because of your comment I tried. I'm now holding you financially liable for my injuries. I'll DM you.

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u/[deleted] 12h ago

[deleted]

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u/confusedandsmellyman 12h ago

Yes it totally is 🤔

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u/[deleted] 12h ago edited 11h ago

[deleted]

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u/Glum_Measurement2158 12h ago

i mesn... you are not the brightest anywhere

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u/Geryon_Official 12h ago

When god said ā€œLet there be lightā€ bro was out of town šŸ˜­šŸ™

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u/confusedandsmellyman 12h ago

You seem to be unable to equate physical limitations with mental limitations. Given your comments though I'm not surprised. Good luck, you'll need it lmao

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u/stathis0 12h ago

Not necessarily. A doctor knows enough to sort through the garbage to find what is valuable, but the average person might not be able to do that, and in medical matters the consequences of the latter could be very not good.

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u/rustyroo2021 12h ago

They can also write scripts for what is needed lol I cannot 🤣

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u/mesembryanthemum 11h ago

And they know why X is no good in this case, because you are allergic or it's contraindicated or you already tried under its brand name and it did diddly squat or....

Ask any reasonable person about chemo and their experience and what was their reaction to the chemo and odds are good they'll say well, everyone's experiences are different but this is how I reacted. Doctors also get that. Armchair doctors usually don't.

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u/Phantom_0347 12h ago

Have fun being your own doctor then

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u/rustyroo2021 12h ago

Nah, I just google after the fact for more info once the professional does his thing.

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u/ivieta1 12h ago

he was googling first

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u/Salomill 11h ago

As a layman you have no idea if the treatment makes sense and it is applicable to your situation